In Dawn’s project, engaging patients highlighted just how different the perspective of the patient can be from that of health professionals.
Transcript
So as I just mentioned in my previous comment, I think having patients and caregivers involved on the team helped us sort of ground the projects in a realistic perspective from their views, not just from ours as researchers or as healthcare professionals that were also on the team. It helps us reaffirm why we’re doing the project and the perspectives of patients and family.
I also think that having her on the project also brought up issues that we hadn’t thought about and, as I mentioned, reminded us that we need to pay attention to not just the patients with cancer but also the caregivers involved in their symptom management.
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- Impact on Research – DawnIn Dawn’s project, engaging patients highlighted just how different the perspective of the patient can be from that of health professionals.
- Skills for Partnership – Dawn
- Supports needed – DawnThe research process, as well as people’s roles and responsibilities, should be explained from the outset. Dawn thinks this would help prepare everyone for engagement.
- Skills for partnership – DawnMaxime, Cathy and Dawn think the most important skill for patients is being able to share their patient experience
- Relationship building – DawnConnecting with patients and learning more about one another has been helpful for Dawn
- Defining partnerships – DawnPatient engagement can evolve into a full partnership, suggests Dawn
- Developing partnerships – DawnDawn’s research team finds patient partners by reaching out to colleagues or support groups